What a RAADS-R Score Actually Means

· NDMeet Team

You answered a long list of statements somewhere on the internet, and a number came back. Maybe it was 42. Maybe it was 156. The page that produced it probably told you what side of 65 you landed on and left you there.

This page does not host the questionnaire and does not calculate anything. It explains where that number comes from, what the research actually says about it, and — the part most pages skip — how much disagreement there is about how well it works.

Where the number comes from

The RAADS-R is the Ritvo Autism Asperger Diagnostic Scale-Revised. It was published in 2011 by Ritvo and colleagues in the Journal of Autism and Developmental Disorders. It has 80 statements, each answered on a four-point scale, and the answers add up to a single total.

In that original study the questionnaire was given to 779 people: 201 who already had an autism spectrum diagnosis and 578 comparison participants. The paper states that a score of 65 or greater is consistent with a clinical diagnosis of ASD. It reported sensitivity of 97%, specificity of 100%, and test-retest reliability of .987.

Those are unusually strong numbers, and they are the numbers most websites quote.

What happened when it was used in an ordinary clinic

In 2019, researchers at an adult autism outpatient clinic in Pittsburgh reviewed the charts of 93 adults who had come in for an autism evaluation. About a third of them — 31 people — were diagnosed as autistic. Everyone had completed the RAADS-R and the AQ, and had taken part in the ADOS diagnostic interview.

The researchers compared each measure against what the clinicians actually concluded. The results were much weaker than the original study:

RAADS-R accuracy reported in the original validation study compared with a later outpatient clinic studyThe 2011 validation study reported 97 percent sensitivity and 100 percent specificity. The 2019 outpatient clinic study reported sensitivity of 0.52 and specificity of 0.73, with an area under the curve of 0.58 where 0.5 would be chance.The same questionnaire, two very different results2011 validation study201 already-diagnosed vs 578 comparisonsSensitivity97%Specificity100%2019 outpatient clinic study93 adults referred for assessmentSensitivity0.52Specificity0.73Area under the curve, 2019 study0.5 = chance0.58 = RAADS-R here1.0 = perfectSources: Ritvo et al. 2011 (PMID 21086033) · Conner et al. 2019 (PMID 36600688)

Accuracy figures reported for the RAADS-R in its original validation study and in a later outpatient clinic sample. The 2019 authors concluded that clinicians should not rely on self-report measures alone.

In that clinic sample, adults who were diagnosed as autistic did not score significantly higher on the RAADS-R than adults who were not. The authors concluded that clinicians should not rely solely on self-report measures when diagnosing adults, and that better measures are needed — ones that work across age and gender and that separate autism from other psychiatric conditions.

Why the two studies disagree

The gap is mostly about who was being compared with whom.

The 2011 study compared people who already had a confirmed diagnosis against comparison groups. That is a relatively easy separation to make. The 2019 study looked at people who had all walked into a clinic because something in their life prompted a referral — a much harder and more realistic separation, because everyone in the room had some reason to be there.

A questionnaire that cleanly separates diagnosed autistic adults from the general population may still struggle to separate autistic adults from everyone else who wondered enough to seek an assessment.

A neurodivergent adult sitting at a kitchen table with a half-closed laptop and a notebook, thinking about a screening questionnaire result rather than reading it, while someone else makes tea nearby.

What your number can and cannot tell you

It can tell you that you recognised yourself in a particular set of statements about social experience, sensory experience, and language. That recognition is real information about your life, and it is often what prompts people to look further.

It cannot tell you why. Traits measured by this kind of questionnaire overlap with a lot of other things — including ADHD, anxiety, depression, and the effects of long-term stress. Scoring above a threshold does not isolate a cause. Scoring below one does not close the question, particularly for people who have spent years learning to present differently in social situations.

It also cannot account for how you interpreted the statements. Two people who live almost identical lives can answer the same item differently depending on what they assume "difficult" or "usually" means.

If you are trying to decide what to do next

The number is a starting point for a conversation, not a verdict to act on alone. A few things that tend to be more useful than the total itself:

A note on the questionnaire itself

We do not host the RAADS-R here, and that is deliberate. The original article is distributed under a Creative Commons Attribution Noncommercial licence, which does not permit commercial reuse. The AQ-10, a shorter screening questionnaire, is likewise free for non-profit use while commercial use requires a licence from its distributor.

Some sites that host these questionnaires do so without that permission. We would rather explain what the research says than reproduce material we are not licensed to reproduce.

Sources

This page describes published research. It is not a diagnostic tool and not medical advice.

Frequently asked questions

What is a RAADS-R score of 65?
In the original 2011 validation study, 65 or greater was described as consistent with a clinical diagnosis of autism spectrum disorder. That is a threshold chosen in one study, not an official diagnostic boundary, and later research in a general clinic found the questionnaire separated diagnosed from undiagnosed adults poorly.
Does a high RAADS-R score mean I am autistic?
No. The questionnaire cannot make a diagnosis. High scores also occur for reasons other than autism, and some autistic people score lower than expected. Only a qualified assessment that looks at your history and current life can answer the diagnostic question.
Why do different websites describe the RAADS-R so differently?
Most cite the original 2011 validation study, which reported very high accuracy under research conditions. Fewer cite the 2019 outpatient clinic study, which found sensitivity of 0.52 and specificity of 0.73 when the questionnaire was compared with clinician diagnoses in ordinary practice.

Sources

  1. pubmed.ncbi.nlm.nih.gov
  2. pmc.ncbi.nlm.nih.gov
  3. pubmed.ncbi.nlm.nih.gov
  4. www.autismresearchcentre.com